Wednesday, September 14

Liquid intake restriction lifted

I talked to Daniella earlier. She said Dr. Olga - his oncologist - came by yesterday, while Steve was visiting. She lifted the liquid intake restriction, told Stefan to go ahead and drink when he was thirsty. She also lifted his food restriction, saying he should he whatever he had a taste for, whenever he got hungry. I may just take him a pot of rosolek (chicken noodle soup) later this week... if he's feeling up to a visit, and if he wants any soup.
Dr. Olga also told Stefan she wanted him out of bed for a while each day. He should be getting up and sitting in one of the chairs in his room. He'd sat up in bed before, swinging his legs over the side of the bed, but now she wants him off the bed. I'd imagine he doesn't much feel like it, but she wants him to do it anyway. She hasn't yet requested that he walk the halls, toting his IV tower along side him yet. But I think that's just because his immunity is still too low and she'd prefer to limit his exposure to things that come into his room, rather than having Stefan out and about just yet.

This waiting is the pits... We're waiting for his week-long round of chemo to be through. Then we wait for another week, before they do another bone marrow biopsy to see how successful the chemo was. THEN, we wait for the test results from the biopsy... Patience is a virtue, they say. I say I'm not feeling so virtuous these days... But what can you do?

Stefan hasn't changed much since yesterday. Still feeling weak and lacking oomph. Daniella said he was a bit "perkier" this morning, so he must have slept well last night. He's still losing weight - he's down over 10lbs from what he was when he went to the ER last Monday. But that's to be expected. It's when he's lost a quarter or a third of his "original" body weight that gets me worried. Not just how he'll look, but how he'll feel, and how that will affect his attitude.

I couldn't read him yesterday... I couldn't tell if his positive attitude was still as strong as it was a week ago. I brought him an orange piece of paper (yay! orange!) on which I had printed "It is what it is. We cannot change what it is, but what we do now affects what it will be." It's taped to the wall facing his bed, next to all the pictures of his grandkids and family, so he can see that wall at all times. I'm hoping that his own 'quote' reminds him to stay positive. I'm hoping that, because I also have it up at home, to remind me to stay positive. Hopefully.

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