Monday, December 19

DITTO from Wed, same thing different day.Sun 12-18

Sunday after returning from the church Christmas Pageant to see Ela, Julia & Stevie, Stefan had his blood drawn at Suzia's house. Later that afternoon while attending Ashley's Birthday party (more on that on C.S.B.T.Fire site) Stefan received information that his counts are low and needed to be infused again. SOOOOO to the hospital we took off, but this time, since we had to be at the hospital at 6:45/7:00 am anyways, we were asked to go to Northwestern Memorial downtown. Harvesting will go on as planned for monday morning we were told, unless his counts are really tooooo low to do it. Temporary port goes in at 8:00am then the harvesting after that.

Stefan spent the night in an observation room on the second floor. Since I remember that the family waiting room on the 15th floor had a coach I spent the night over there, near where Stefans room used to be on the 15th. The observation rooms are small and only a chair to sit on for me. The time by then was midnight already. The bed would be tight for us both and since he was getting blood that meant he would be checked every 1/2 hour.

More info later in day.
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During the night Stefan had a fever of 100.3. Harvesting did not go on today. By the time Stefan's platelets and 2 units of blood were transfused and drawn, to check his counts it was too late in the day to start the harvesting. "Those people" are there only from 7am to 3pm. This procedure takes 4-6 hours. It will be done on Tuesday 7am, we were told unless something else happens before that. Stefan DID have the temporary port put in his neck. It took a while for the bleeding to stop, (scared me also)the gauze was soaked. It finally stopped around 5pm. The nurses called twice to check up on him. I was prepared to go in again to the ER for the dressing change. I have not done one of these yet and was not prepared to do it in this case.
Stefan is very tired today and achy bones in his back. Of course the stiff neck from the port (put in under local) fits under that bill also. The clear dressing on his temporary port is "On" in such a way that the tape is pulling on his skin in a weird way. The nurse tried fixing it, but knowing Stefan you know he will not complain, he said it will only be on/in for 2 more days than it comes off anyways.

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